Here is what we have learned during Week 1
The first night Paige was home, her nose stents began slipping out from beneath the steri-strip tape that the doctor had placed on her after surgery. We didn't expect this so soon. We panicked not knowing whether to really shove it back in....we didn't want to damage her freshly altered nose. We also didn't want to hurt her. After a 11:00pm emergency call to Dr. Sundine's office, we were intructed to shove it back up and retape it.
Well pushing it in slowly...only to have it slide right out...resulting in pushing harder over and over again was not making anything better. Paige was screaming bloody murder and it was making both Phil and I sick to try and get it to stay in. We managed to get it in and slap on some tape. The paper tape the doctor told us to use was not sticking.
"Oh no, what do we do?"
(Krista: You actually taped over her ears and hair.
Phil: Whatever - it's on.)
"Let's try that again...Go Angels!"
When it fell out in the night completely, we finally got a peek at her nose without the stents
Ultimately the stents just fell out in her bed in the night and we could not get them back in. We made an appointment with the surgeon to have him tape them back in. And then in the night they came out again. So that is when we had to get creative. I researched online and consulted my Babycenter Cleft Board buddies and they gave some taping suggestions. I tried a few but the paper tape was just not cutting it. I decided to try something a little stronger. I tried satin tape, cloth tape, butterfly strips and ultimately band-aids.
Here are a few of our other attempts
A video of a very happy Paige with a very special taping job. She is still cute no matter what....
We have invested in some surgi-strips which seem pretty strong but pricey. We are also looking into tapes that NICU's use for infant feeding and air tubes. We need the kind of tape that is strong but will be best for long term use on her delicate skin. Some nurse friends have made some suggestions and we will order and try out some more kinds this week. It seems like it is a learning process and I know that in a month or so we will be pros and hopefully Paige will be more used to it too.
We are considering putting on masks while putting her tubes in so she won't assume every time we hover over her face she is going to get things forcefully shoved up her nose. Phil has suggested we dress up like clowns so as to instill her with a deep fear of clowns as early as possible. At any rate, so far she seems to forgive easily.
Click Links Below
Some Play Therapy with our niece...she was interested in Paige's "bandage" on her "owie." I had the bag of tapes and band aids with me, so we cut some tape, punched a hole so her dolly could "breathe" and put it across her nose. She even had the tape there 3 days later when we saw her again. She really felt like she could relate to Paige and seemed to understand that the tape was going to help Paige get better.